End The Wait

A light blue box with a orange and blue logo reading "End The Wait". Text in blue and orange to the right of the logo reading "A statewide issue campaign to end the Intellectual/Developmental Disability (I/DD) Waiting Lists.

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What is End The Wait? 

The End the Wait Campaign is a statewide issue campaign working to educate the public and policymakers about why Kansas needs to take bold action in order to end the Intellectual/Developmental Disability (I/DD) Waiting Lists.  The End the Wait Campaign is a collaborative project of the Disability Rights Center of Kansas (DRC) and numerous stakeholders, funded through a generous grant by the Kansas Council on Developmental Disabilities (KCDD).  The ultimate goal of the End the Wait Campaign is to successfully end all Waiting Lists for the I/DD Waiver.

What are Home and Community Based Services (HCBS)? 

What is at stake? 

There are an estimated 4,500 Kansans with I/DD waiting for life sustaining I/DD Waiver services. Currently, the waitlist to access these services is about nine years. Most getting services do so because of a crisis rather than because their spot on the list finally coming up. 

The services provided through the I/DD waiver are critical and tailored to the individual. They can be used to cover the cost of housing, in-home care, or tuition for day-service programs to help the individual develop social skills, continue education, or start job training. Without financial help from the state, out-of-pocket costs for support services could cost families roughly $50,000 per person, each year. 

While many lawmakers continue to look the other way, Kansans with I/DD are being left behind. 


What community based services are funded through the Home and Community Based Services (HCBS)-I/DD Waiver?

  • Assistive Services
  • Adult Day Supports
  • Financial Management Services
  • Medical Alert-rental
  • Overnight Respite
  • Personal Care Services
  • Residential Supports for Adults
  • Residential Supports for Children
  • Enhanced Care Services
  • Specialized Medical Care
  • Supported Employment
  • Supportive Home Care
  • Wellness Monitoring
  • Targeted Case Management (This is not a waiver service and is available once you are found eligible for I/DD services. If you are not KanCare eligible, there may be a fee for this service.)

Eligibility for I/DD Waiver Program

  1. Must be 5 years of age or older;
  2. Have Intellectual Disability that began before the age of 18;
  3. Have a diagnosis of a Developmental Disability that began before the age of 22;
  4. Must be determined program eligible by the Community Disability Determination Organization;
  5. Meet the Medicaid long-term care institutional threshold score;
  6. Be financially eligible for Medicaid.

Learn more: https://kdads.ks.gov/kdads-commissions/long-term-services-supports/home-community-based-services-(hcbs)-programs/programs/i-dd

End the Wait Campaign - Eliminate HCBS Waiting Lists (Open-Captioned)

End The Wait